Coping Strategies and Their Impact on Quality Of Life in Adult Patients with Hemophilia

Abstract

Introduction: Improving the quality of life in PWH is a reality due to new treatments Coping strategies used by PWH to his illness, and therefore for its adaptation, could be a determining factor on improving their quality of life.

Aim: We assess the coping strategies used by PWH adults and their relationship with their perception of quality of life.

Methods: Cross‐sectional study. The sample was 63 PWH of 16–62 years. The average age 36.73 (SD: 15.20). 57% have severe hemophilia A, 35% on prophylaxis, and 71% practice self‐treatment. Only 13% have inhibitor, 64% without hemartrosis in the last year and 56% have arthropathy. 18% are HIV‐HCV coinfected. 32% have university studies, 54% are working and 57% are single. Clinical data sheet, quality of life questionnaire (SF–36) and Inventory coping strategies (CSI).

Results: PWH without hemarthrosis, arthropathy, co‐infected, singles and younger have better quality of life, especially in the physical aspects and pain (P < 0.01). PWH married, who are working and without hemarthrosis used as coping Resolution of problems, Cognitive restructuring, Social support and Emotional expression (P < 0.05). Patients with more days of treatment employing less Emotional expression (r = −0.27) and Social withdrawal (r = −26). A greater distance from the hospital better quality of mental life (r = 0.25) and Social functioning (r = 0.24). We observed relationship between quality of life in mental health and coping strategies appropriate (r = 0.33). Worse physical and overall quality of life with inadequate coping strategies (r = −0.28).

Discussion/Conclusion: The adequate coping strategies for PWH, promotes better adaptation and acceptance of their disease, allowing him a good quality of life. It is important that we work in promoting strategies of coping to promote well‐being in PWH