TY - JOUR 
A1 - Toledano Toledano, Filiberto
AU - Rodríguez Rey, Rocío
AU - Moral de la Rubia, José
AU - Luna, David
T1 - A Sociodemographic variables questionnaire (Q-SV) for research on family caregivers of children with chronic disease
Y1 - 2019
SN - 2050-7283
UR - http://hdl.handle.net/11268/8687
AB - Background
Chronic diseases in childhood can affect the physical and mental health of patients and their families. The literature on pediatric chronic diseases has found important associations between the sociodemographic variables of children and their caregivers and negative health consequences in families.

Methods
In this study, we aimed to design and validate a questionnaire on sociodemographic variables that would be useful for research on pediatric chronic diseases; and investigate the relationship between sociodemographic variables and psychosocial variables among family caregivers. First, we created a questionnaire that consists of 20 demographic, medical, and family-related items based on a literature review and expert evaluations. This questionnaire was then validated by 335 expert reviewers in the field of Social Work, who work daily with the families of patients with chronic diseases in 10 National Institutes of Health of Mexico. The validation was based on three empirical criteria created specifically for this study, and the reviewers evaluated the usefulness, relevance, and permanence of the items. In a second cross-sectional, correlational and comparative study, a total of 446 family caregivers of children with chronic diseases were interviewed, and they completed the Sociodemographic Variables Questionnaire for research on family caregivers of children with chronic sociodemographic diseases and four psychosocial measurement instruments for evaluating anxiety, depression, caregiver burden and quality of life.

Results
Based on the results of the first study, we created the Sociodemographic Variables Questionnaire (Q-SV) for research on family caregivers of children with chronic diseases, and it includes 17 items that assess demographic, medical, and family characteristics. The results of the second study showed that the 17 sociodemographic variables obtained in the validation by expert judges are useful for measuring and evaluating the relationship between psychosocial variables in families of children with chronic diseases.

Conclusions
Psychosocial and sociodemographic factors are relevant for the development of research processes for families that care for children with chronic diseases.
KW - Niños
KW - Enfermos
KW - Familias
KW - Cuidado del niño
KW - Tratamiento médico
KW - Familia
LA - eng
ER -