Resumen:
Introduction: Hemophilia is a chronic disease, and as such it can affect the perceived competence of patients, especially children. A negative perception can result in psychosocial problems and maladjustment. A positive perception makes the person feel able to cope with the challenges of everyday life.
Aim: Evaluate the self‐perception of children with hemophilia compared with group of children without disease, and assessing whether the disease affects their personal development.
Methods: Cross‐sectional study. The sample was 58 children aged 8 to 12 years, 53% PHW and 47% healthy children, the average age 10.8 (SD: 1.20). We recorded clinical and physical data, the Self‐Perception Profile for Children (SPPC) and a Physical Activity Questionnaire (FELS‐PAQ). In the group of hemophilia we assess their status joint (HJHS) and physical functioning (HAL) children version.
Results: PWH show good joint status (M = 5.87; SD = 8.7), and a physical functionality within the average (M = 69.29, SD = 29.1). There are no significant differences between healthy children and PWH in self‐perception, both show a high perception of themselves (M = 23.4, SD = 6.67). Regarding physical activity, we observe ...